We need to understand the person with CP’s symptoms in order to interpret your family’s genetic findings.  This means we will not be able to sequence your DNA samples until we have some basic information.  The more you help us understand, the better our interpretations will be.

If you sign up for this study:

• You are giving us permission to obtain available CP-related data automatically through the CP Research Network if the person with CP is seen at one of the following centers:
  • Nemours/Alfred I. duPont Hospital for Children, DE
  • Children’s Hospital Colorado, CO
  • Nationwide Children’s Hospital, OH
  • Phoenix Children’s Hospital, AZ
  • Seattle Children’s Hospital, WA
  • St. Louis Children’s Hospital, MO

This information will be de-identified (without any personal information) and protected by extensive safeguards. You are giving us permission to contact your CP care provider for information about CP-related symptoms to help “fill in the gaps.”

• You can ALSO partner with us to help understand the connection between your genetics and your symptoms by answering some questions about the person with CP’s symptoms and/or by sharing the person with CP’s medical records and images YOURSELF. While this may contain information regarding your identity, there are strict safeguards in place to protect you and your information.